Carney Complex Awareness

Carney Complex Awareness

21 April 2020

Countdown to our 5th Carney Complex Awareness Day 24th April 2020

Do I have CNC/ Does my patient have CNC?

Here you have a table you can use to help you get diagnosed

OR as a Dr alongside other medical findings make a diagnosis.

We do not promote self-diagnosis, if you suspect you have CNC please be sure to talk to your health professionals.

Also be advised to keep the foot notes present!

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a: To make a diagnosis of CNC, a patient must either (1) exhibit two of the major criteria confirmed by histology, imaging or biochemical testing OR meet (2) one major criterion and one supplemental one.

b: with histologic confirmation.

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For Drs: If in doubt, please do not hesitate to contact the NIH. They have the expertise needed to confirm or disagree.

For People suspected and undiagnosed: If struggling to get a diagnosis, please reach out to our support group. You may of course reach out to the NIH too but you might also want to know your not alone and that there is a network of people that can encourage you on your journey.

(This table was taken from the document “Carney Complex: an update (2015) page 6

R. Correa, P. Salpea and C. A. Stratakis)

Link to – Carney Complex: an update (2015) http://www.eje-online.org/content/173/4/M85.full.pdf

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